Below are some challenges you may face and how you might deal with these.

Person making a plan
Challenge
A healthcare professional has suggested creating a plan, but I don’t feel ready.

It is ok to say no – it’s your choice. If you do decide to make a plan, the process will be taken at your speed. If you find it too upsetting, then you can stop at any time and come back to it.

Challenge
I asked about spending my final days in a hospice, but was told this is not always possible due to a shortage of beds.

Sometimes what you would like for your future care isn’t always possible. This can be very disappointing and upsetting. Talking about your wishes early will give health care staff a chance to talk to you about whether your wishes can be met. If not, staff can suggest other options that might be available.

Challenge
There are many healthcare staff involved in my care – I don’t know who to talk to about advance care planning

Most healthcare staff should be willing to discuss your Advance Care Plan. If not, they will suggest another person who can do this. It is best if you have the conversation with someone you know and trust.

Person important to individual
Challenge
There is conflict or disagreement on what is best for the person important to me.

Conversations can be difficult when there is conflict or disagreement about the person’s wishes. Everyone should be given space to voice their thoughts and opinions, but the focus should be on the person making the plan. It is important to respect their final decisions.

Challenge
I feel upset that no one is listening to me during the conversation.

It is important that you have a chance to voice your thoughts and any concerns you have. If you feel upset, mention this to the healthcare professional or the person making the plan and ask for a few minutes to offer your thoughts during the conversation.

In the video below, Dr Kathryn Mannix, A Retired Palliative Care Doctor, provides useful tips for managing the more difficult aspects of advance care planning conversations.